{This post is a continuation from "The Eyes Have It: Part I" }It didn't take long for Dr. Boles to confirm I had glaucoma. The visual field test spoke volumes. If you've never had a visual field test, it is looking into a dark chamber while white dots of light appear all over the field of view. As they appear, you click a joystick button. The dots of light vary in position as well as intensity and they paint a striking picture of just what range your eye can see--left, right, up and down.
I asked how this could happen to me being only 37 at the time with no family history of glaucoma. He said while it was unusual for my case to develop so fast, it was not that rare for someone my age to develop the disease. I still don't know what that means (1 in 200 under age 50). I guess "rare" to him would mean he hadn't seen it before. Another thing more rare in my case is that glaucoma is usually detected by regular eye exams well before there are any symptoms and certainly before one notices losing any vision. I already had impaired vision and here's the kicker, the doctor also informed me eye damage from glaucoma is damage directly to the optic nerve and that damage is permanent and irreversible. Another strange thing to me was it was only my left eye with the problem. My right eye seemed to be perfectly fine both for vision and for eye pressure (intraocular pressure). The doctor kept asking if I remembered being injured in that eye at any time in my life as it could have resulted from an injury years ago.
The typical treatment for glaucoma is pretty straight-forward and simple. There are really only four levels of treatment. The first starts with drops. My eye pressure was so high when I visited the first doctor, she started me on drops right away. Dr. Boles even gave me more drops to bring down the pressure in his office before he thought it was safe for me to leave. On the next visit, the eye pressure still had not come down enough, so we needed to move to the next step which is the SLT. Selective Laser Trabeculoplasty (SLT) for the treatment of primary open angle glaucoma (POAG) uses a laser at low levels to basically drill holes into the trabecular meshwork of your eye to try to reduce the intraocular pressure.

We did that and it lowered the pressure only slightly. It would be time to move on the next step which was a more invasive surgery. We needed to schedule a trabeculectomy. In a trabeculectomy, or glaucoma filter procedure, an opening is made within the eye that allows fluid to leave the eye and travel underneath the conjunctiva, the clear membrane that covers the surface of the eye. If you didn't catch that, they were going to cut a whole onto my eye and put in a bleb or filter which would create a new path for fluid to drain in the eye. And yes, this procedure is done while you are awake with only local anesthesia. So I started with tons of different eye drops, had one laser-type surgery, and now, they are ready to cut me in the eyeball? What did I do to deserve this?
The operation was a success AND a failure. The physiological value of the surgery is to reduce the eye pressure to protect the optic nerve. That part worked. The failure? Well, remember I said any damage already done to the optic nerve is permanent? My vision in that eye did not improve. Because the vision is limited, that also throws off my depth perception so it is very hard to see exactly how close or far objects are. This makes some things challenging, like parallel parking, pouring a drink into a glass, golf (forget that one), catching a ball or anything thrown at me. In addition to my vision not improving, my eye had shifted about 45 degrees because it cannot focus on anything strong enough to keep it in proper position. So, I not only have severely impaired vision in my left eye, but now I'm frickin' cross-eyed (see pic below)? What else could go wrong? NEVER ASK THAT QUESTION.
Fast-forward two years to December 2008 and then things would get scary once more. I woke one morning near Christmas time and I could not see well out of my right eye. The GOOD eye. Things were very dim--that's the best way I can describe it. It was almost like trying to see through a frosted windshield (like picture of tree above). I could see shapes and colors, but nothing was clear. I had regular appointments checking both eyes and this just suddenly popped up out of the blue--I guess just like the left eye did two years earlier. I rushed to the doctor that afternoon and my eye pressure was so high, I again had to be put on drops right away and they even had to give me oral medication to bring down the pressure before they would let me leave. I hated the oral meds because it altered my sense of taste. All soda tasted flat and many things tasted strangely different and sometimes metallic. How high was the pressure? Well, normal intraocular pressure is a range between 10 and 21 mmHg. I was at 49 mmHg and this was after drops to bring down the pressure. I actually had a physical feeling like something was in my eye (can eyeballs explode?).
I was now losing vision in my "good" eye. I would now need to go through the same steps with my right eye and I was quickly scheduled for an SLT for the right eye this time. Just as with the left eye, the SLT did not lower the pressure to a safe range so there would need to be another trabeculectomy. There is a dark fear about having eye surgery on the eye you can see with when you know you cannot rely on the other eye any longer. For days after the surgery while healing, I would be technically blind. I would have to go with it. Not doing the surgery would be sure damage to my optic nerve with pressure that high. So, despite being at a new job and about to start the annual audit, the most important time of year for someone in non-profit finance, I had to opt for emergency surgery with a new doctor. My previous doctor had left the practice so I found a new specialist I liked very much, Dr. Alan Robin.
Because the situation was monitored closely, the surgery was again a success. My vision in my right eye is not perfect, but it is functional and I can drive and work and read and do most things normally. I can't see well from far away, especially people. I cannot read small road signs from the distances I used to (don't tell the cops), especially street name signs. GPS has helped with that immensely. If you come up on my left side unannounced, you are likely to scare the hell out of me. Other than that, the drama is over for now. No more drops and my eye pressures are well within the normal range (11-14 mmHg).
I thank all of you who have been helping me through this. Many of you offered prayers and well wishes and good vibes and positive energy and whatever you could do to wish the best for me. That is greatly appreciated.
Make sure you take care of your eyes. Get check-ups regularly. Make sure you get the "puff" test and make sure the tech administers it correctly. If you suspect anything in your vision is not right, ask about it. If the optometrist does not give you the answers you like, find your nearest ophthalmologist. If you have reached that magic age of 40 and never seen an ophthalmologist, it may be a good idea to check in with one. There are lots of eye conditions to check and monitor other than glaucoma and as we age, these things become more and more important. My eyes have it. Try to take care of yours.
My doc used to have some great FAQs on his website but they seem to be gone now. There is lots of info on the web. Check it out, or ask me if you have questions. Here are some things I've learned about glaucoma over the last couple of years:
- Glaucoma is not affected by diet (despite what you've heard in the past)
- Caffeine has no effect on glaucoma or intraocular pressure
- It usually runs in families
- African-Americans are more susceptible to the disease (6x to 8x more likely than Caucasians)
- There is no connection between high intraocular pressure and high blood pressure
- Those with diabetes often have problems with glaucoma although the link is not clear
- Marijuana does help reduce eye pressure but the other effects of marijuana far outweigh the positive effects of smoking marijuana
- Being hit in the eye can cause glaucoma/increased eye pressure
- Excessive eye pressure is a medical emergency and cannot be put off
- Damage to the optic nerve is permanent
- Depth perception accounts for a lot more than we give credit to
- After cancer and heart disease, blindness is America's 3rd top health fear
The most important lesson I learned is that my wife is incredible. She was there from the first eye drop to the first face I saw when the bandages were removed and the light beamed back in. She drove me to and from work 25 miles each way in heavy traffic every day for two months while my sight slowly made its way back. We said in sickness and in health and for richer and for poorer and we are testing the fringes of all those elements it seems. Thank you Swinitha for being the ultimate wife, cook, chauffeur, nurse, seeing eye-dog (I mean that with compassion) counselor, cheerleader, and friend.









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